June 16-17, 2011
Washington, DC Â Â Â Â Â Â Â Â Â Â Â Â Â Â Â Â Â Â
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As we are moving from the development phase to the implementation phase of the NBSTRN, the overall goal of the Next Generation Meeting was to get feedback on:
- the central functions of the network and coordinating center
- identify the major issues we need to focus on over the next 2.5 years
- and ensure that we’re developing the appropriate resources to meet the needs of the research community Â
The NBSTRNÂ Next Generation Meeting was a great success! Workgroup breakout sessions helped to define workgroup priorities for the next 2 years of the contract. The summaries for these sessions are posted on the NBSTRN Wiki.Â
Presentations
Overview of Newborn Screening - Melissa Parisi and Tiina Urv
NBSTRN Next Generation Overview - Michael Watson
NBSTRN's Role in Pilot Projects - Amy Brower and Dieter Matern
Cystic Fibrosis Newborn Screening - Michael Rock
RDCRN Registries and Longitudinal Studies - Jeffrey Krischer
Krabbe Disease Registries - Patricia Duffner
HRSA NBS Related Activities and NBSTRN - Sara Copeland
CDC NBS and Molecular Biology Branch - Suzanne Cordovado
Baby's First Test - Natasha Bonhomme
NBS and Genetics Activities at APHL - Jelili Ojodu
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