NBSTRN Next Generation Meeting June 16-17, 2011

June 16-17, 2011

Washington, DC                                    


As we are moving from the development phase to the implementation phase of the NBSTRN, the overall goal of the Next Generation Meeting was to get feedback on:

  • the central functions of the network and coordinating center
  • identify the major issues we need to focus on over the next 2.5 years
  • and ensure that we’re developing the appropriate resources to meet the needs of the research community  

The NBSTRN Next Generation Meeting was a great success! Workgroup breakout sessions helped to define workgroup priorities for the next 2 years of the contract. The summaries for these sessions are posted on the NBSTRN Wiki


Overview of Newborn Screening - Melissa Parisi and Tiina Urv

NBSTRN Next Generation Overview - Michael Watson

NBSTRN's Role in Pilot Projects - Amy Brower and Dieter Matern

Cystic Fibrosis Newborn Screening - Michael Rock

RDCRN Registries and Longitudinal Studies - Jeffrey Krischer

Krabbe Disease Registries - Patricia Duffner

HRSA NBS Related Activities and NBSTRN - Sara Copeland

CDC NBS and Molecular Biology Branch - Suzanne Cordovado

Baby's First Test - Natasha Bonhomme

NBS and Genetics Activities at APHL - Jelili Ojodu

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Published On: 
Thursday, June 16, 2011