Integrating Newborn Screening: Long-term Follow-up into Primary Care Practices
A new Funding Opportunity Announcement (FOA) was just announced whereby the Health Resources and Services Administration (HRSA) is requesting applications for long-term follow-up grants:
Purpose:
The purpose of the funding opportunity is to demonstrate the feasibility and capability for data collection from the newborn screening identified patient population in primary care clinics to accomplish the long-term follow-up roles and responsibilities as outlined in the 2011 report, “What Questions Should Newborn Screening Long-term Follow-up Be Able to Answer? A Statement of the US Secretary of Health and Human Services’ Advisory Committee on Heritable Disorders in Newborns and Children (SACHDNC).”