Session 6: Summary of Core Issues

The final webinar contains an overview of the series, stressing the importance of newborn screening as a public health initiative in the United States, and the necessity of informed consent, protection of privacy, and the consideration of other legal and bioethical issues in maintaining its success. A summary of biobanking, policy, and programs surrounding newborn screening research in California is given, and litigation in Minnesota and Texas dealing with these issues are recapped. Finally, recommendations and proposals to current procedures, as well as attitudes of parents and the public, are discussed and summarized.